Thursday, March 8, 2012

The Illness Monster Strikes Again

Life as Ian's mother is never dull.  Never ever ever.  Shortly after Evie was born, Ian developed a little cold.  I ignored it, kids get sick all the time, right?  Besides, when is Ian not developing some new medical drama?  We used to call him patient zero, but now we've just changed his name to Job.  (He really needs one of those plastic bubbles to walk around in.  I think I'll see if Amazon.com stocks them.)  I ignored it for so long, in fact, that two and a half months later, his dripping nose and tired attitude were just another part of daily life.  Then of course, his teacher said something.  I went to pick him up, unaware that she was going to point it out and that I was going to feeling dumb that I hadn't taken his nasal situation more seriously. 

She suggested that he might have allergies.  I considered this, and thought it might be a good reason to finally get rid of our cat (I love the cat, but I don't love the cat hair.  Please don't hate me!)  I knew it wasn't allergies, or at least, I thought I knew, and suggested it might be a sinus infection, given it's duration. 

And then I made an appointment with our family doctor.  The PA took one look at him, "I think he has allergies.  Oh, yes, he has allergy shiners under his eyes.  Oh, and the mucous!  Yes, allergies."  Gulp.  Noooo!  Our next step was to take him to the hospital to get his blood drawn.  I won't even go into the details of that experience.  Okay, actually, I will.  While I held Ian in my lap and tightly wrapped my arms around his little body to hold him still, a nurse sat in front of him and held his legs down as he tried to kick her.  Then another nurse poked him with the needle as he was screeching and hollering and squirming, but as soon as that needle went in, he stopped, looked down at it, and suddenly became ultra fascinated with the whole process. Go figure.  A nifty bandage and a teddy bear later, Ian was proud of his battle wound and let everyone know it as I took him out for ice cream. 

Fast forward to the next week, I met with an Ear Nose and Throat specialist.  He took one look at Ian.  "No, I don't think he has allergies.  I'm convinced it's a sinus infection."  Honestly, please don't tell me that because that invalidates the entire blood-drawing experience.  And it also means I have to keep my cat.
The ENT looked at Ian's blood results and confirmed his suspicions.  "Nope, no allergies, not at all.  I say sinus infection.  Let's get him an x-ray." 

Now an x-ray?  This is Ian we are talking about and he is going to be skeptical of everything we do to him medically.  Negotiating him into the x-ray chair was like trying to negotiate the ring from Gollum in Lord of the Rings - "my precious". 
With enough convincing and bribing (the catering really needs to stop) Ian agreed to let them "take a picture of his head" which then in turn confirmed the sinus infection.  But not just any sinus infection.  A SEVERE sinus infection, as with all things that have to do with Ian.  The answer?  6 whole weeks of antibiotics.  The drug companies should be happy.  And Walgreens too.  If the antibiotics don't work, then surgery is the next option, and something tells me that we'll probably have to do that too.  Just because that's how life is as the mother of Ian.

So we are currently taking care of that, thinking the craziness of Ian's issues might die down for a little while until I went to pick him up from school last week.  His teacher stopped me and asked me if I've noticed that he sometimes has "staring spells."  I'm sighing as I type this because yes, I have noticed the staring spells.  I just thought they were normal.  But she suggested that he might have seizures.  So now I'm off to find a pediatric neurologist within our network (will have to travel out of town for that) to evaluate Ian and hopefully rule out absence seizures.

Anyone else out there have a child with apraxia and seizures?

The only real winner in all of this medical drama is the cat, who is sitting happily curled up in my lap, totally unaware that I was ready to give her the boot just weeks ago.

9 comments:

  1. God bless you for being such a good mommy Loni. I enjoy reading your blogs and pray am praying for answers with the absent stare for Ian. It was great to run into you, Ian and Evie at Wal-Mart. ~ Renee

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    1. Hi Renee! It's always great to see you! Thanks for the compliments :) Prayers are always welcome for sure!

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  2. You are awesome and doing great work. As a mother we question almost everything we do, we need to be kinder to ourselves. We would tell our friends that, I'm telling you. . . .You're amazing. You will get what you need accomplished in the proper time.

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    1. Aww, thanks Burlene. You know exactly what I need to hear :hugs:

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  3. Hello! I have no idea how I came across your blog, but after reading this, we would likely have a LOT to talk about! My son is 4 and has apraxia in addition to a complicated medical history. I always tell doctors that my son will do the exact opposite of whatever they think. Hope your son can avoid the surgery!!

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    1. Hi there! I just now read your comment. I have four kids and for some reason, Ian seems to be the one with all of the medical issues. You'd think the apraxia was enough, you know? How is your little guy coming along? Ian is going to have surgery in June, which is pretty much what I expected. I feel so bad for these kids that spend so much time at doctor's appointments. I hope your son is doing well :)

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  4. Hi! My son is 3 1/2 and has apraxia. Fortunately he hasn't shown any signs of seizures, but do you read the blog http://www.thewriterrevived.com/? Her daughter had a seizure a couple of weeks ago & her latest post follows up on that. I found your blog on the Different Iz Good site and can't believe I haven't ran across you before. I blog also, so I'm always on the lookout for apraxia blogs to follow!

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    1. Hi there! I haven't read that blog, but I will definitely head over there now. Thanks for the heads up! That's great news about your son not showing signs of seizures. I, of course, want to make a connection between the seizures and the apraxia in the hopes that the insurance will start paying for speech therapy. But that's for another blog post ;) I will also check out your blog, thank you for stopping by!

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